At Scoliosis Care CentersTM, we have a commitment to our patients: to give them the best care. There are options out there to help when you are unsure you can continue healthcare due to finances.
We are out of network with all insurances. Keeping that in mind, finances should never be the reason you decide against medical care. If you have out of network chiropractic benefits, you may be reimbursed for some of your care based on those benefits! Many of our patients have had success fundraising through sites like those linked below and on top of fundraising, here at Scoliosis Care CentersTM we offer an array of in house interest free financing options for those who qualify! Contact our Chief Accountant Diana Romero at (408) 379-0133 or by e-mailing firstname.lastname@example.org in order to discuss what options are available for you!
THE CHILDREN’S SCOLIOSIS FOUNDATION
Check out some of our current patients fundraisers by clicking their images below for ideas on what might work best for you! Have any fundraising questions? Contact our Scoliosis Case Director who can put you in contact with some parents who have had success in fundraising!
Hello friends and family,On March 14th we received the news that Stella has scoliosis. The curve in her spine was already bordering severe, and due to her age, there is a 100% chance that it will progress since she will be going through another growth spurt soon. Curve progression can lead to serious developmental problems with her lungs and heart. We were told that even with conventional bracing, she will most likely need surgery due to the fact that it will progress.
Based on the fact that conventional bracing was ineffective in correcting the curve, we researched and found a doctor on the east coast who specialized in asymmetrical bracing, an innovative method designed to overcorrect the curve.
Stella has been in her brace since April 4th and after a new xray taken August 29th, we received the news that her curve has progressed by 9 degrees (meaning it’s gotten much worse).
We have found a different doctor and very promising program in San Jose, CA that focuses on addressing the root cause of scoliosis and not simply the symptoms. The obstacle is that this doctor is out-of-network, so the treatment program and individualized equipment will not be covered by insurance.
Hello I am Renee
I am a 15 year old girl who has been diagnosed with scoliosis. Scoliosis is curvature of the spine. Around 2 years ago my rhythmic gymnastics coach saw I had a curve in my spine.so I went and got a x-ray where they said I had a 15 degree curve and I can do anything I want. But the one thing he didn’t tell me was that it would get worse and worse. Then 18 months later I went back and got another x-ray. I was told I have a 40 degree (Cobb angle) lumbar curve and I was to go see a scoliosis surgeon. For me surgery was the last resort as I was a rhythmic gymnast who recently won the nationals and represented the country in the Australian nationals and having surgery would stop me from pursuing my passion. After being told I needed to go see a surgeon my parents and I searched for a clinic which would offer me non-surgical scoliosis treatment. Fortunately we found a place called Janzen and Janzen, in San Jose CA, which offered the treatment I needed. We sent my x-rays through and we got a reply from them telling us there were actually two curves and my Cobb angles of the spine were incorrect. They were actually 59 degrees thoracic curve and 51 degrees lumbar curve and I would need to be over there as soon as possible. Within ten days my Mum and I travelled over to the clinic in San Jose, America where I started my treatment. I was there for just over 5 weeks.
The Janzen and Janzen clinic treats scoliosis with traction chairs to move the spine, spinal weighting to strengthen and a back brace which also moves the spine. The brace you have to live in for 23 hours of the day, which makes going to school hard as I am usually in pain most of the school day. I sit in the Traction chair for 42 minutes a day and I also do 60 minutes of standing in Spinal Weighting. I also need to do core, nerve stretching and schroth breathing.
Every 3 to 4 months I have to go back to Janzen and Janzen and have adjustments made to my chair, spinal weighting and back brace. This treatment won’t end until I have finished growing which will be about another 3 years. Each visit requires me to bring all my equipment with me as well as my Mums and my personal luggage, which is quite a struggle. When I am flying I have to have a sky couch to be comfortable as I can’t sit up for too long without being in a lot of pain, with the flight time to San Francisco being 12 – 13hrs, and the sky couch gives me the ability to lay down.
Once I have finished my back therapy’s I hope to get back in to doing rhythmic gymnastics and living life to the fullest potential as I wouldn’t be able to do if I had surgery.
Also by putting this page up it will hopefully raise awareness for scoliosis
Thank you very much for the support
The funds i raise will cover return flights and accommodation while in San Jose for my weeks Re-assessment and adjustments
We are asking for your help to get 12 year old Kyrah the medical treatment she needs to fight the extremely aggressive scoliosis that is attacking her spine, lungs, heart, and body. Her doctors are stumped on why the Boston back brace they had her in doesn’t work. The next step is an aggressive scoliosis treatment at a clinic in San Jose that medical insurance won’t cover. Please consider helping her get this much needed treatment…..
The treatment needed will cost $5,000 for each week of intensive therapy. She will begin the treatment with 3 weeks of therapy ($15,000) and then 1 week every 3 months for the next 4-5 years. As part of her therapy she will need a traction chair which cost $7,000, an aggressive full torso brace (during the 3-5 years of treatments she will need 4-7 different ones as she grows) each one costs $6,500, spinal weighting equipment which is around $500, and supplements that she will need to take daily to help with her pain and the nutrition for her body to grow correctly with this disease will cost around $300 a month. We are looking at needing 35,000 to just begin the program.
*quick side note: you do not need to include a tip on your donation**
In November of 2016 we noticed Kyrahs spine didn’t look right and that there was a curve in it. We realized she must have scoliosis. We took her to her doctor who did an in office exam and advised us that she did have scoliosis but it was less than 10*. We were told to bring her back in 6 months for a follow up. Fast forward to April of this year and we are back at the doctors office. Once again we were informed that “her curve was small and to just keep an eye on her as it was still less than 10*”. We kept talking to her doctor about the Scoliosis and that in November she had started complaining of having pain in her legs and lower back along with a feeling of weakness in her legs. She was also having issues with bowel movements, no matter how much water or fiber she was taking into her diet daily she would sometimes go a week without one. The Doctor finally agreed to order an x-ray just to check and have a record of her curve. Well her x-ray showed that her curve was not under 10*, in fact her curve was already at 28* on the top and around 12* on the bottom. We also found out that her spine doesn’t just have a S shape to it but that her spine is also twisting. Not only that but the x-ray showed she was severly constipated and needed to be put on a liquid diet for a full 24 hrs along with needing to take Miralax for a while. We were immediately referred to a spine specialist for pediatric orthopedics and advised she would be fitted for a back brace. In Late June of this year Kyrah received her 1st back brace (a Boston Brace) and was advised she would need to wear it for 16-20 hours everyday. We also learned she would need to do this until her skeleton was considered mature and she was done growing. She made us so proud with how strong she was with all of this and how well she did with wearing her brace as advised. But in November of this year we found out that her brace was not helping her. In fact her curves got 10* worse on both the top and bottom. She was now at 38* on top and 24* on bottom. The doctor she sees for her brace decided we needed to get a new brace made. However both he and her spine specialist don’t know if it will work. Their plan of action for my daughter is to wait and see if it helps. If not they will wait until her curve gets bad enough to do surgery. They feel that if the brace prevents the curve from getting worse it is a success. Well the wait and see approach is NOT ok for us. And in fact it is proving not to work as her curves are progressing. We went looking for other treatments. We found a care center located down in Campbell, Ca that treats patients with scoliosis and they are having great results with not only preventing curves from getting worse but with getting the curve straighter and at lower degree. How can we not give this a chance? The catch is that medical insurance companies don’t want to pay for anything more for scoliosis patients then a brace and future surgeries. Yes surgeries because it seems to never be just one surgery but a number of them as they age. So we will have to pay for the medical treatment for Kyrah out of pocket which will get expensive but to prevent surgery it will be worth every penny. We are hoping to start this intensive thereapy program in January of 2018, so only a month away. But to get start it is going to cost us $30,000 for the first 3 weeks of treatment and personal medical equipment, not including the cost of a hotel room or food during those 3 weeks. She will be in therapy M-F from 8am until 4pm. Once the 3 weeks are over she will come home with the neccessary equipment and 6 days a week she will do between 2-3 hours of therapy at home. After being home for 3 months we will travel back down to the Care Center for another week of intense therapy, this will cost us another $5,000, plus food and a hotel room. Then every 3 months for the next 4-5 years we will go down for a week of therapy, each time it will cost another $5,000 for the therapy. (by the time we finish the program we will cost us somewhere between $150,000 to 200,000). She will continue this therapy treatment until her body has reached full growth maturity. They measure this growth on a Riser scale of 0-5. Right now Kyrah isn’t even rated a 1, so we have a long way to go and she has a lot of growing still to do. And because she has a lot of growth left that also means if we don’t get this treatment as soon as possible Kyrah’s curves will get worse. As the curves get worse so do the twists and that will start to impact her lungs and her heart. Because of this we have also chosen to Home school Kyrah for the rest of 7th grade and longer as we get used to a new part of our daily lives. We will be learning how to manage the treatment and hopefully not let our other 2 children feel too huge of an impact. Thank you for any help you are able to give us and please share her GoFundMe with everyone you know.
Juliana was supposed to have extremely invasive spinal surgery this summer that would have left almost her entire spine fused solid after her two month recovery process…until we were referred to an amazing clinic in northern California that has had incredible success in treating cases like hers with multiple types of intensive therapies, bracing, exercises, etc. to get her out of the surgical range. They have patients from around the world trying to get in and they have graciously accepted Juliana because they think she is a great candidate for successful treatment and because she is so highly motivated, they are as excited as we are to see how well she does! The Scoliosis Care CentersTM at Janzen & Janzen Health Center is in Campbell, California (near San Jose/San Francisco). The initial treatment is 3-4 weeks long, followed by another 1 week of treatment at 3 months and another at 6 months, and then it will spread out to 6 months between treatments. Unfortunately, this is not something our insurance will pay for, so between the custom braces, equipment, and highly specialized treatment required, as well as travel and housing expenses, we are in need of help! We want to do whatever it takes to give Juliana this chance to avoid an awful surgery with a lifetime of potential complications! We hope to start her treatment on July 3rd, and there is no way we can make this happen on our own so we greatly appreciate anything you can do to help! Thank you!
Jessica is 16 years old and was diagnosed with ‘Adolescent Idiopathic Scoliosis’ in September 2015. ‘Scoliosis’ is a condition that means the spine is abnormally curving (when you look front on to a person) and rotating. ‘Idiopathic’ means it is a type of scoliosis in which the underlying cause has not been identified.
After much research Jessica is confronted with 2 possible treatments.
The first is a wait-and-see approach: wait to see how big the curve gets, and if it reaches 45-50 degrees perform surgery – an operation called a ‘scoliosis spinal fusion’. A spinal fusion would not completely straighten her spine and there would be a permanent restriction of movement in her back as a result of the surgery.
The second treatment option is to proactively seek to address the cause of the scoliosis, as well as implement as soon as possible a range of physical therapies to straighten the spine long term and non-surgically.
While we wait-and-see, Jess is enduring constant discomfort and pain and finding it increasingly difficult to do many of the simple things a girl of her age can do, such as carry a school bag or stand up for more than a minute or two.
We have chosen to take the path of the second treatment, which can divert the need for surgery if we act quickly now before Jess reaches skeletal maturity. We only have a small window of time before it will be too late as Jess passes through adolescence.
We have found a clinic in San Francisco, USA who specializes in cases like Jessica’s. It’s called Scoliosis Care CentersTM by Janzen and Janzen Chiropractic.
We need to visit the Scoliosis Care CentersTM immediately for up to 3 weeks, then again in another 3 to 4 months time for a week. Apart from the clinic visits, Jessica will have to dedicate the next few years to disciplined therapy at home every day with specialized equipment and wear a brace. Jessica is determined to work hard to do whatever she can to straighten her spine without surgery.
Your help will enable us to meet the Scoliosis Care CentersTM fees, the specialized testing, the equipment we will need at home for therapies, air travel, accommodation and related expenses for Jessica and her mum to travel to San Francisco.
The initial Urgent requirement for her treatment is $47,000 with follow-up costs of $19,000 – Total $66,000.
We would also like to bring publicity to this condition to help support the families affected by it as so little is known in the general public.
From the bottom of our hearts we thank you for your help.
Ella & Moriah
About ten months ago we learned that Ella has scoliosis (incorrect curvature of the spine). As we prefer more natural and holistic paths for health we consulted with a chiropractor who specializes in scoliosis treatments. We were offered a couple options in response to our, “Now what?” question. We chose to watch and see what would happen in the forthcoming months. It was also recommended, at that time, to have Moriah checked as the earlier scoliosis is diagnosed the easier it is to fix and prevent extensive problems. We chose to wait a bit to have Moriah checked too, mainly due to needing to pay cash for the appointment. About a month ago we were able to afford Moriah’s screening and a re-check on Ella. The results of that appointment were life changing. Not only did Moriah’s screening show a mild scoliosis developing but Ella’s scoliosis had gotten significantly worse. It became clear that continuing to wait and see what happens would not be a wise choice. Untreated and unstable scoliosis is painful, deforming, and potentially life threatening if internal organs are compressed in a way that causes them not to work properly. So we are now participating in an intensive, non-surgical scoliosis protocol that has a great track record of fixing improperly curved spines.
Moriah’s program is one week of stretching, strengthening, and straightening to be followed by wearing a brace as needed while the body adjusts to the new spine position and gets stronger in that new position. Ella’s program is three weeks of the same plus a customized chair for straightening exercises.
Partly because this method of treating scoliosis does not fit the western medical mindset and partly because this method is time and skill intensive it is VERY costly (40 – 50K) and not covered by insurance or the medical bill sharing organization that we have. But we believe it is a better option than surgery (or allowing the scoliosis to likely worsen in Moriah’s case) therefore worth the cost.
We’ve worked with the clinic to get a welcome discount in several areas in the cost breakdown (even allowing us to begin treatment before we’ve secured the funds needed) and are taking further steps to borrow money. Borrowing this amount will take several weeks to finalize. In the meantime, we are asking you to prayerfully consider if this is a cause you would be willing and able to donate to. Any amount will help and any funds we receive will strictly go toward the cost of the program and necessary equipment. Should we get funds over and above what our cost is we will donate that to another (to be determined) family in the same program unless otherwise directed by you.
Knowing that, with God all things are possible for them that love Him, that He has good plans for us, and that He will provide all that we need according to His riches we thank you for praying for Ella and Moriah’s scoliosis, their treatment, and for giving as you are led.
P.S. If you would like more detailed information about the program or the girls’ specific cases let us know. We’re happy to share.